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Healthy Living Who Should Ain A Patient’S Wellness Data, Where Should They Endure Stored, Together With How Should They Endure Exchanged (Part Two Of 2)

This post is a follow-up to a prior post at this link. It is a thought-provoking conversation that examines whether the patient information stored inwards the national wellness information network (NHIN) will, inside the adjacent 5 years, probable endure "owned" past times major firms such as Oracle, Google, in addition to Microsoft.
I wrote:
While a patient ought to "own" all their wellness data, it doesn't hateful that such ownership is the same as having actual physical possession of them all. After all, each healthcare provider...has physical possession of the information that they collect. It's UNREASONABLE to await that all those information (including images) endure shipped to the patient for local storage in addition to to inquire the patient to free those information each fourth dimension a provider needs them. Instead, the information should endure stored where it is collected.
There is ane exception, however: the PHR. All PHR information should ever endure stored with (i.e., physically possessed by) the patient (preferably, imo, inwards an encrypted information file), fifty-fifty if collecting information through the PHR is done via a kiosk inwards a doctor's business office or through a provider's spider web site. Furthermore, all EMR/EHR information (with some possible exceptions, such as a psychotherapist's notes) should endure sent automatically to the patient's PHR; in addition to the PHR should stimulate got the agency to assist the patient empathise what those clinical information mean.
To bargain with the privacy issue, the PHR should possess functionality that enables a patient to seat the item information able to endure shared with item types of providers. In addition, patients' PHRs should give them guidance in addition to warnings almost who should stimulate got access to item information based on their roles in addition to responsibilities. In that way, whatever information are stored inwards a provider's database/warehouse could only endure shared with 3rd parties when explicitly authorized past times the patient.
Another commenter wrote then:
From a wellness delivery context, at that topographic point are a number of stakeholders in addition to providers who work patient information in addition to who contribute to it...But to me ownership also agency who decides where the information is to come upward from, what flat it should convey in addition to the analysis of it etc, all questions related to the skills of the medical practitioner. The household unit of measurement physician is the medical practitioner who oversees in addition to looks afterward the patient's overall wellness in addition to as such has access to all information contained inwards a patient's medical record. It is the role of the GP to brand diagnosis in addition to recommend treatment, prescribe medications, monitor patient health, refer handling to other clinical specialists in addition to give other wellness related advice etc. It seems to me that the possessor of the patient's medical wellness tape is collaboration betwixt the patient in addition to the household unit of measurement physician. The patient has the correct to know what is contained inwards that tape but ultimately it is the GP who decides what goes there, in addition to how best to work it.
...From NHIN or network perspective, at that topographic point is a physical ownership component. An administrative entity is needed to care where a medical wellness tape resides, how it volition aspect like, in addition to where it is to endure distributed to. Different parts of the wellness tape volition endure supplied past times unlike providers. Standards request to endure applied in addition to privacy concerns request to endure satisfied. Time is some other element. Access to accurate medical information inwards a timely way are the ii overarching considerations of the NHIN.
I replied:
It sounds similar you're describing the Medical Home model with the GP controlling the period of time of patient data. In that scenario, the patient would authorize a "community of referral," i.e., "trusted partner" clinicians to which the GP tin refer in addition to commutation patient data. I concur that the patient request non specify which information should endure exchanged with a item specialist every fourth dimension the GP makes a referral. But the patient should indicate, at to the lowest degree once, which information tin endure shared with unlike types of clinicians. This tin endure done, for example, past times having the patient approve (or modify) a recommended information laid in addition to allow the GP create upward one's heed the particulars inside that laid of data.
...I consider the NHIN containing minimal information sets as defined past times measure CCR/CCDs. This patient information subset includes provider in addition to patient identifying data; contacts in addition to advanced directives; patient's insurance in addition to fiscal data; in addition to patient wellness status, which includes codes for diagnoses, problems, in addition to conditions; allergies; medication prescription information; immunizations; vital signs; recent laboratory results; codes/descriptions for procedures in addition to assessments rendered; history of encounters; in addition to aid programme recommendations. By contrast, here's a link to what I consider a comprehensive information set, which includes advanced PHR information in addition to addresses the information needs of the multidisciplinary teams comprising a medical home.
Although an NHIN could brand sure of import information available to clinicians at slap-up distances, the vast bulk of communications are betwixt providers inside local/regional HIEs (and other communities of referral), non betwixt those at slap-up distances. So, there's no request for the complexities of a monolithic centralized organisation for everyday information exchange. It's much simpler, convenient in addition to less costly to work a node-to-node pub/sub architecture that relies on desktop/standalone apps in addition to encrypted e-mail attachments. Such a mesh node network model (which resembles the telephone system) makes to a greater extent than sense than forcing all transactions through a fundamental server. The NHIN would endure most useful for biosurveillance in addition to for clinical enquiry since it is a centralized information warehouse provides an tardily way to aggregate huge numbers of de-identified records from roughly the country. The NHIN would also endure a skilful way to shop backups of patients' encrypted information files. And since an NHIN would non comprise comprehensive information sets, connecting pub/sub nodes with local information stores to ane some other inwards a decentralized way is a to a greater extent than efficient in addition to secure way to commutation extensive patient data. This is why I suggest a hybrid cyber-architecture inwards which nodes connected to fundamental information stores, along with nodes connected to local information stores, are the primary vehicles of information exchange.
And he so wrote:
Some of the models that I stimulate got seen rely on a fundamental backbone for communication in addition to coordination. It follows the SOA pattern in addition to would stimulate got nodes connecting to a fundamental highway. It seems that connectivity is a large consideration inwards existence able to collect patient information from a diverseness of sources in addition to providing front end cease interfaces for people to access information. Collection powerfulness endure to a greater extent than onerous inwards a decentralized model. Implementing a monolithic centralized organisation sure has its challenges though. For one, at that topographic point is a larger burden to learn a consensus from all of the stakeholders in addition to to determine the most efficient architecture. I suppose at that topographic point are disadvantages in addition to advantages to both centralized in addition to decentralized approaches. For illustration if my dwelling is inwards New York in addition to I locomote to San Francisco in addition to learn sick, presumably the infirmary inwards SF would stimulate got create access to my wellness tape inwards the centralized NHIN. I am non sure how transparent that would endure inwards the to a greater extent than decentralized or node to node implementation. There would endure connexion issues, knowing who to connect to in addition to login issues etc. But I concur with you lot at that topographic point are sure merits to a hybrid (best of both worlds) approach.
To which I replied:
...I think of a fundamental communication backbone as existence the Internet with pub/sub nodes connecting to each other across the fundamental highway past times exchanging encrypted e-mail attachments asynchronously.
The front end cease interfaces I'm proposing are programmable information grid templates used past times the node to gain the information files (via a node's publisher function) in addition to eat & acquaint the information files (via a node's subscriber functions). The software programs used past times the publishing nodes automatically (a) retrieves information from whatever necessary information shop (local in addition to remote) past times whatever agency required (SQL, XML or CSV parsing, etc.); (b) performs whatever necessary information pre-processing (i.e., information transformations in addition to translations, analytics, etc.); (c) packages the resulting information laid inwards an encrypted information file; in addition to (d) attaches the file to an e-mail, addresses the e-mail, puts it to the outbox, in addition to ships it to the appropriate subscribing node(s). Corresponding information grid templates, residing with the subscribing node(s), so eat in addition to homecoming the e-mail attachment. All this using local resources in addition to without the complexities of a large centralized system.
[Alternative to having everything stored in a centralized NHIN include]...carrying your encrypted information file (containing a lifetime of wellness information downwardly to just an emergency information subset) in addition to respective templates on a retentiveness stick or smart card. Another is to stimulate got a centralized directory of GP e-mail addresses in addition to patient identifiers whereby your GP's address tin endure located.
He so responded:
GE Healthcare refers to eHealth as the total healthcare information technology infrastructure that connects in addition to adds value to the healthcare delivery organisation across multiple hospitals or a region, including physicians, aid providers, patients, in addition to others. technologies&page=article.display&article.id=19448">http://www.hospitalhealthcare.com/default.asp?title=Highfocusonpartnershipsandinnovativetechnologies&page=article.display&article.id=19448
Applying the GE Definition to an overall strategy non subject on whatever ane technology but encompassing a number of value added solutions, a best of breed approach if you lot will, which could endure applied to the blueprint in addition to deployment of an efficient, terms effective in addition to improved healthcare information technology infrastructure , is unopen to what you lot are advocating, I think Steven. H5N1 strategy inwards which a solution is non locked into anyone item vendor, which rules out the Oracle, Google in addition to Microsoft monopolies, but matches vendor strengths in addition to functionality to the business at hand.
Another commenter so wrote:
MSFT, Google, in addition to Oracle would non desire to "own" or endure responsible for the safekeeping of the data. I await the NHIN volition cease upward existence a decentralized network. No ane volition ain the NHIN. The U.S. Government volition serve an administrative role.
I so added:
The GE model is unopen to what I'm advocating. I didn't observe whatever call past times GE for the inclusion of decentralized, asynch, P2P, pub/sub, mesh node networks--which I claim are essential for connecting all parties--but they didn't exclude it either.
I envision all vendors of wellness information technology apps providing APIs that connect to the nodes, i.e., PHR/PHA apps would connect to consumer-facing nodes, EHR/EMR would connect to provider-facing nodes, in addition to CDS (clinical determination support) apps would connect to the aforementioned apps. In addition, APIs for research-related analytic apps would connect those apps to nodes accessing the centralized NHIN information warehouse for which the Feds stimulate got the administrative role. I think this is consistent with the previous comments.
Another commenter so wrote:
The organisation volition request to endure portable, secure, in addition to inexpensive. While I stimulate got a domestic dog inwards this fight, I experience smart cards are the way things will/should plough out. The systems needs to endure architected inwards a way inwards which the data/information follows the patient - the only way to do that is to learn inwards portable, i.e. a smart carte (like most of the residue of the the world uses). It volition request to endure secured, using the most modern web-based technolgiiues, such as PKI. The solution, nosotros feel, is smart cards designed for healthcare.
And I replied:
IMO, work of smart cards in addition to retentiveness sticks are sure component of the solution, in addition to numerous vendors are inwards this niche. Inclusion of PKI is a skilful idea. The primary issue, I believe, has to do with determining the best ways to learn the information stored inwards such portable storage devices (as good as inwards other information stores including DBMSs, XML files in addition to delimited information files) shipped roughly the province as needed in addition to accessed past times whatever number of various 3rd parts software programs. And that number has to do with factors such as available bandwidth in addition to connectivity, security, privacy, convenience, simplicity, and, of course, cost. I ground that the node-to-node model I'm proposing provides the greatest overall benefits inwards those terms.
As such, the smart carte reader would endure connected to a node, inwards the same way PCs, servers, retentiveness cards, smart phones, etc. stimulate got their node connections. The hybrid mesh node architecture, I farther contend, would endure the most flexible in addition to useful (see this link).
Where I (my company) stimulate got a vested involvement is inwards having the nodes utilize optimally efficient delimited information files, modular information grids templates, in addition to e-mail (SMTP) carry to minimize resources consumption, expense, hassle, etc.
A previous commenter so added:
Many folks including GE, in addition to many of us hither are advocating mechanisms to supply an appropriate healthcare information technology infrastructure...I was involved for 3 years on a comprehensive projection at a terms of millions to create an eHealth system...The eHealth architecture was a centralized model. Cost was a major factor inwards this projection in addition to as I was leaving a re-think in addition to re-planning endeavor was existence carried out to maintain the costs down. It seems that flexibility is ane of the key words. I think it is terribly of import to [be]...thinking exterior the box. 
I so wrote:
I would desire my de-identified information sent to a regional HIE in addition to the NHIN for enquiry purposes (at to the lowest degree a minimal information set). And I would consider storing a backup of my entire wellness information over my lifetime remotely inwards the NHIN, but ONLY if it was inwards an encrypted information file for which only I had authorized access. Then--in instance I could non access past times local re-create of the file (e.g., if it was destroyed, if I didn't stimulate got it with me on a smart carte or retentiveness stick in addition to my PC was unavailable, or if I was unconscious or otherwise incapciated in addition to the ER docs needed my emergency data)--data sets that I've (previously) authorized could endure extracted from that remotely stored file in addition to sent to appropriate providers. I would desire this to endure done inwards a node-to-node (n2n) network, so that no human would stimulate got direct access to my information file, in addition to I would also desire to work biometric indicators as the universal IDs.
Another commenter so wrote:
All those involved inwards the administration of a patient, including the patient (if compus mentus) should endure able to stimulate got variable access to the patient's data. Ideally the patient should stimulate got a wellness manager (typified previously past times the "Family General Practitioner) who delegates the relevant access to the necessary information inwards social club to optimize the patients' management...The patient needs to convey responsibleness for his ain wellness aid administration in addition to thence should grip all the keys inwards all but emergency situations, in addition to this is where biometrics could endure used to review critical data.
My thought is that piece the patient should stimulate got the alternative to give the GP ascendence to stimulate got total in addition to consummate command of one's wellness information without whatever constraints, such global ascendence is non mandatory. If a compus mentus patient refuses to allow sure information to endure accessed and/or shared, fifty-fifty though it puts the patient inwards jeopardy, the patient, with ample warning in addition to education, tin silent preclude that information from existence used; doing so, however, would free the providers from liability in addition to may fifty-fifty increase the patient's liability/cost if lack of that information results inwards worsening health.
Another commenter so wrote:
The NHIN concept volition request to involve a lot of technologies to learn inwards work, including patient identification, information access, information sharing, as good as information storage. Concepts including cloud computing, smart cards and/or retentiveness sticks, mesh node networks, in addition to many others volition all play into the NHIN inwards ane flat or another.
From an historical information technology perspective, at that topographic point has been a long-standing conflict betwixt the "functionally driven" vs. the "data driven" evolution models. My seat is that a information driven infrastructure is, inwards the long run, to a greater extent than effective, secure, in addition to adaptable. This allows invention occurring with vendors in addition to regions as good as the changing trends inwards healthcare services, patient needs, in addition to ultimately the character of aid to endure facilitated.
In my "user/patient" perspective, I desire to insure that my information from aid received piece inwards the military, as good as the information I received as a tyke (before I fifty-fifty understood the long-term ramifications involved), is available to my electrical current primary aid physician in addition to whatever specialists. I also desire to insure that they stimulate got information that I stimulate got forgotten or may non realize is pertinent to whatever pending aid I am almost to receive.
To back upward this, I believe a decentralized model tin endure built to a greater extent than affordably. However, aid must endure made to insure that a cumbersome laid of duplicated information is non created. The worst matter that could lead seat inwards the NHIN blueprint would endure allowing multiple versions of information to be for a unmarried patient.
Here are a few of my proposed blueprint requirements:
1) Each provider or stakeholder would maintain to stimulate got a information repository that is built for speed to allow "current care" efficiencies in addition to reliability (the various EHR initiatives inwards progress today).
2) Regionally, information warehouses would endure created using a mutual measure for the information architecture (but remaining agnostic from a vendor dot of stance such that inwards ane seat it may endure a Microsoft solution in addition to inwards some other it could endure Oracle, etc.). These would flat the Regional HIO's in addition to cash inwards one's chips the backbone of the HIE. The "primary" information warehouse for each patient should endure located inwards the part where the most frequent access would occur, such as the ane associated with their primary aid physician.
3) To consummate the NHIN concept, various applications would so endure developed that would aggregate the appropriate collections of information from multiple information warehouses for the purpose of satisfying their objectives. I would assume these applications would usually exclude whatever patient-identifiable data. Otherwise, at that topographic point needs to endure a machinery for patient ascendence of access.
4) As patients locomote exterior of their regions, local clinics in addition to hospitals who request access to information from the information warehouse would work applications to force pertinent information specifically associated to the patient for the purpose of providing character of aid (this is where a smart carte or some other flat of secured patient access tool would endure needed). Once this link is established, the regional information warehouse would force whatever novel information from that facility's repository.
5) If a patient makes a permanent motility from ane part to another, a laid of applications would also be to motility (not copy) the information warehouse information from ane part to another. When this happens, some flat of an alarm could endure provided to the local systems/data repositories to seat their information inwards an "inactive" status, or re-link it with the novel warehouse.
All of the other technologies in addition to applications associated with the Health information technology Infrastructure would so endure built in addition to designed based on this model. Some may link to a specific repository associated with a unmarried infirmary or provider, relying on the link betwixt it in addition to the regional information warehouse for whatever long-term information; piece others may link direct to the appropriate regional information warehouse.
And some other added:
Can I throw an exception here? We stimulate got a pregnant number of people inwards the U.S. who are mentally competent legally but who either won't empathise that they stimulate got command over their healthcare information or how to practice that control, or who just can't endure bothered with it. That doesn't hateful they stimulate got made the determination to relinquish control, however...Any wellness information policies in addition to technical infrastructures request to convey these folks into account...Poor judgment on the component of a not-terribly-bright or enfranchised patient could atomic number 82 to disastrous medical care.
A commenter so added this:
I am a theatre believer that the information should follow the patient in addition to that the patient should retain command inwards an only decentralized manner. Centralizing the information inwards whatever way inwards the U.S. is fraught with failure. Even inwards England, inwards a ane payer system, they cannot learn it done in addition to that projection is straight off over budget past times billions of pounds.
Security is an only variety out champaign of written report but the reality is that a username in addition to password...is non going to work. The organisation volition non piece of work if people do non trust it. So trust in addition to encryption in addition to authentication volition endure paramount.
...In a smart carte system, the identities of the patient (regardless of how many institutions they stimulate got been treated at) is federated on the card. The carte tin human activeness as a much stronger security machinery than anything else existence proposed (offering both PKI keys, the obvious two-factor authentication model, in addition to a photograph on the carte itself!), tin offering portability in addition to interoperability, is inexpensive, in addition to is both scalable in addition to sustainable.
And I chimed inwards with:
Although we've been having a largely technical intelligence to this point, the concluding ii comments reverberate the request for audio governance concerning wellness information at residue in addition to inwards transit. The dot almost determining if someone is able, willing in addition to competent to brand decisions almost controlling the personal data, in addition to if not, what should endure done, are examples of areas for which policy in addition to physical care for are necessary. Whatever architectural models are used, they must endure flexible plenty to accommodate policies that may stimulate got yet to endure established.
I'd similar to add together to the proposed blueprint the 3 tier architectural requirements proposed, I believe, past times CMS:
(1) RHIO / Regional HIE. (2) State flat HIE. in addition to (3) NHIN.
This goes beyond the local information stores, of course, in addition to as I empathise it, the information to endure managed past times each of these has to do with the relevancy of the information for sure purposes. For example, flat 1 would endure focused on information related to the local 'community of referral,' i.e., PCP/GPs exchanging patient information with the specialists to whom they refer, as good as information shared betwixt hospitals in addition to exterior clinicians. Level 2 focuses on information required for populace health, as good as for people inwards province facilities (nursing homes, prisons, etc.). And the NHIN would endure focused on information for people inwards federal facilities, as good as nationwide biosurveillance (e.g., for communicative disease) in addition to other things affecting populace safety. I believe there's to a greater extent than to it, but I think this is the full general concept.
The number of what item information sets would endure managed past times each tier, what information tin in addition to cannot endure de-identified, the physical care for for feeding information to each tier, exchanging information betwixt the tiers, in addition to issues related to privacy in addition to security, are governance-related decisions. I'm seeking an architecture that would supply the necessary information relevant to the needs of each tier, but inwards a way that eliminates (or at to the lowest degree minimizes) overlap in addition to (a) avoids storing patient-identifiable information inwards centralized databases at whatever of the tiers piece (b) transmitting in addition to presenting the necessary information with minimal resources consumption in addition to cost.
A commenter so wrote:
Biometrics volition obviate the request to behave information storage devises...The large hurdle volition endure getting historical information on file in addition to inwards the format necessary to access it....Education roughly responsible healthcare in addition to the results of ignorance would endure cheaper for governments than adopting multiple methods in addition to levels of responsibleness taking for patients. Determining a flat of "legal competence" to create upward one's heed if a patient retains or loses their correct to determine how their information is distributed is a hard business in addition to requires developing a robust examine which takes into concern human relationship rootage in addition to teaching of the private i.e special tests formulated for unlike races/nationalities/religions etc
Another ane wrote:
The points almost corpus mentus patients: I am a familiar with a term called breaking the glass. Patients would commonly brand decisions almost their healthcare but when incapacitated at that topographic point is a policy inwards seat to allow other clinical caregivers to brand those decisions.
[The]…comments almost governance in addition to security are good taken. It would require some flat of legislation to endure passed that would enact policies for information privacy. Nobody wants Big Brother watching. Security is in all likelihood ane of the most overarching concerns affecting the implementation of an NHIN.
From what I am reading, aggregated information which would endure used for historical trending analysis in addition to could endure retained inwards a centralized repo whereas electrical current information would endure local in addition to accessed only past times the household unit of measurement Dr. in addition to other clinical specialists pertinent to patient care. There are silent issues of portability where a patient's medical information needs to endure accessed inwards locales other than where he resides. Encrypted retentiveness sticks, node to node access etc. are options.
And this:
From a security in addition to privacy perspective, the smart carte proffer has a lot of merit to it. The readers in addition to updaters would stimulate got to endure implemented on a national scale to allow the smart carte to endure read in addition to updated anytime anywhere. Possibly something accessible through USB would endure the most appropriate. With every medical see the carte could endure updated with that visit. There could endure software running inwards the provider's business office to convey information from business office records for that patient, aggregate it, in addition to reformat etc to fit with the electronic wellness tape on the smart card. This approach would endure simpler in addition to is a medium that folks work in addition to are familiar with. In terms of adding aggregated information to a national repo, providers could download software that would perform the aggregation function. That in all likelihood would endure voluntary but the information would assistance inwards formulating to a greater extent than effective healthcare policy.
...Also nosotros request an electronic solution for managing drug prescriptions. There would stimulate got to endure a organisation for the Dr. to electronically transmit a prescription to a pharmacy...Again security in addition to privacy concerns are fundamental issues...conformance is also a major challenge inwards getting both clinicians in addition to pharmacists to concur to a measure information format.
To which a commenter responded:
Your comment below is precisely what our HealthID software solutions does...We aggregate the information *using HL7 or SOAP/REST) from the HIS or EMR, learn inwards useable for rules in addition to workflow in addition to CCR, in addition to so stimulate got some real capable encryption software to write those information to the cards in addition to federate the identities with trusted orgnaizations.
On some other blog, a similar conversation was taking place. In it, someone wrote:
I think everybody tin concur that patients stimulate got a correct to consider all their medical information in addition to a correct to create upward one's heed who tin consider what portions of it in addition to endure notified of all disclosures of their medical records. I also think that HIPAA already mandates this...My hurting dot with these novel proposals is...it is way besides complicated...Unless, nosotros brand Internet healthcare as unproblematic for both doctors in addition to patients, it volition non gain adoption...One of the primary reasons doctors are non jumping on the EHR bandwagon is the inherent complexity in addition to the lack of proven hard ROI to the doctor. I submit that the same volition lead seat with consumers in addition to PHRs.
...The PHRs that are discussed hither in addition to elsewhere require patients to convey command of the data. That agency setting upward the PHR, coming upward with provider lists in addition to entering them inwards the software with proper authorizations for various levels of access. Keeping these ascendence lists current. Managing one's credentials in addition to also household unit of measurement members credentials. Making sure that all is upward to date. Changing authorizations to various providers in addition to aid givers based on changes inwards wellness status in addition to on in addition to on....
To which I replied:
It seems to me that with a niggling inventiveness in addition to adequate champaign testing, PHRs tin compass all that's required...via unproblematic P2P pub/sub node networks.
Let's convey the medical dwelling model, for example. Every PCP (GP) establishes a community of referral, i.e., specialists to whom s/he refers patients as needed. The PCP in addition to specialists would institute connections betwixt their decentralized pub/sub nodes, which would enable them to commutation patient information with a few clit clicks. The node-based software they work would automatically populate lists of these network connections. By using the e-mail based organisation I've been presenting, the lists would request niggling to a greater extent than than each specialist's name, e-mail address, surface area clinical licensure, in addition to other possible metadata.
Prior to making a referral, the PCP would hash out with the patient why the referral is existence made in addition to explicate why a item specialist is existence selected, just similar things are currently done. Although no ascendence past times the patient is needed at this point, the patient may asking a unlike specialist for whatever reason. The PCP would so click a clit in addition to the referral e-mail is sent.
Once the PCP receives the specialist's referral credence e-mail, the information for a CCR or CCD (or some similar information set) would endure sent inwards an encrypted information file via e-mail to the specialists. But prior to sending it, the PCP's node software would determine which information appropriate for that specialist must endure excluded from the information file based on the patient's privacy wishes. These information sharing authorizations would stimulate got previously come upward from the patient's PHR past times having the patient's node transportation that information to the PCP's node at an before date. The patient would institute the authorizations by, for example, (a) viewing lists showing the types of information that are appropriate for item types of specialists (and why they are needed) in addition to (b) enabling the patient to modify the listing at whatever fourth dimension (with appropriate warnings when information elements are deselected). The lists could endure organized hierarchically to repose the viewing in addition to choice process. It would fifty-fifty endure possible (although I don't know if necessary) to stimulate got the information laid descriptions e-mailed to the patient for blessing prior to routing the information file to the specialist.

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